“This is the response of the year.”
Today we received very, very, very good news. Six weeks into treatment with Selpercatinib (including holding it for several days from side effects, then reintroducing and increasing it over 4 weeks, at what seemed like a snail’s pace to me), my PET/CT scan yesterday showed NO areas that lit up as metabolically active cancer. “Completely resolved.” Nothing lit up in my lungs (where it all started). Nothing lit up in my chest nor neck lymph nodes (where we biopsied to find out this was lung cancer). Nothing lit up in any of my many, many affected bones, including the spine where the pain had been most severe in November. My brain MRI showed that the 4 tiny spots that were suspected to be metastases and had been treated with gamma knife radiation have either “resolved completely” or have shrunk even tinier than the tiny size they had been. For those who are medically inclined or interested in the before/after images of the PET/CT, you can see them in the post...